I have MS. Ask me anything.

[RW]

(Edit)

Well that's no fun Renee :P

[Renee]

(Edit)

Well that's no fun Renee :P

Sorry, after I wrote the question I realized it may have been a little......sensitive so I edited it.

[Anonymous]

(Edit)

Well that's no fun Renee :P

Sorry, after I wrote the question I realized it may have been a little......sensitive so I edited it.

I deleted it for you Renee.

[RW]

(Edit)

Well that's no fun Renee :P

Sorry, after I wrote the question I realized it may have been a little......sensitive so I edited it.

I don't shy away from sensitive.  Just ask!!!!  I mean it.

[Renee]

(Edit)

Well that's no fun Renee :P

Sorry, after I wrote the question I realized it may have been a little......sensitive so I edited it.

I deleted it for you Renee.

Thank you.

[RW]

:P

[Frood]

I bit the bullet.



Seriously, ask me anything.

Do you or have you regularly taken Prednisone (in any forms) for flare ups or over long term and have you developed the characteristic humpback because of it?

I don't take prednisone regularly.  I have taken it twice.  Once just before I was officially diagnosed in pill form and once in the form of a 3 day infusion during a relapse.  



I don't look like Quasimodo...yet.

Have you followed the recent updates about curing MS through removing and re-injecting bone marrow?

[RW]

I bit the bullet.



Seriously, ask me anything.

Do you or have you regularly taken Prednisone (in any forms) for flare ups or over long term and have you developed the characteristic humpback because of it?

I don't take prednisone regularly.  I have taken it twice.  Once just before I was officially diagnosed in pill form and once in the form of a 3 day infusion during a relapse.  



I don't look like Quasimodo...yet.

Have you followed the recent updates about curing MS through removing and re-injecting bone marrow?

Yes you smart ass  

[Frood]

So would you say that RW goes wacko for MS Schmacko's?



http://www.schmackos.com.au/imageGen.ashx?Compression=100&width=270&image=/media/1872/marro-orig-737g.png">



 ac_razz

[RW]

Hahaha

[RW]

I'm also part of a drug trial so if you have any questions about that, I'll happily answer as well.  Testing on humans is fun!  :)

[Frood]

Which drug and for how long (with dosage)? Are you verifiable on the trial or in the placebo group?

[RW]

The trial started off as a two year double blind trial.  Every participant was either receiving Rebif (3 times a week injections) or ocrelizumab (biannual infusions).  I don't know the doses.  I'm now on the second part of the trial which is the trial drug of ocrelizumab for the next three years.  There was no "placebo".